Rare Disease Day – 28 February 2021

Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Sharon relies on regular intravenous immunoglobulin therapy (IVIg) to keep infections at bay and delights in being a grandmother.

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Update to Member Services due to COVID-19

Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Sharon relies on regular intravenous immunoglobulin therapy (IVIg) to keep infections at bay and delights in being a grandmother.

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Sharon’s Story

Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Here is her story…

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Event 4

Date: 12 October 2020
Location: 123 idfa street, VIC 3111

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Event 3

Date: 12 October 2020
Location: 123 idfa street, VIC 3111

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Event 2

Date: 12 October 2020
Location: 123 idfa street, VIC 3111

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Event – Test webinar

Date: 12 October 2020
Location: 123 idfa street, VIC 3111

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Tyson’s Story

As a baby, Tyson’s ongoing infections were beginning to worry his family. After several hospital admissions they insisted on further testing which resulted in the diagnosis of X-linked Chronic Granulomatous Disease, a rare genetic disease. Here is his story…