On Thursday February 29th, Carolyn Dews, IDFA CEO had the privilege of attending the Rare Voices Australia parliamentary event in Canberra. The theme, ‘Progress Beyond Policy,’ resonated deeply as we… Continue reading Rare Voices Australia Parliamentary Event in Canberra
Author: idfa
Melbourne Member Meet-Up
In early December, we were delighted to host our Melbourne member meet, uniting numerous individuals for connection and learning. ‘Blossoming Together’ was our focus as it symbolises our community’s growth,… Continue reading Melbourne Member Meet-Up
Michelle’s Story
In 2020, when Michelle celebrated her 56th birthday she was finally diagnosed with Hypogammaglobulinemia after years of unknown causes to her being unwell. This is her story…
Vanessa’s Story
On her 23rd Birthday, Vanessa was diagnosed with Common Variable Immunodeficiency (CVID). This is her story…
Dale’s Story
Dale has recently become familiar with the IDFA community when displaying symptoms of an immune deficiency.
Ben’s Story
Ben was introduced to the immunodeficiency community more than 15 years ago, when he met his wife, Lisa. This is where the journey of a carer began for Ben…
Antoni’s Story
After his first immunisations at 6 weeks of age Antoni became severely unwell experiencing a seizure, and this ultimately lead to his SCID diagnosis. This is Antoni’s story…
Isabelle’s Story
Isabelle was 4 months old when she stopped being able to breath properly and started turning purple and in her hands and feet. Later she was diagnosed with ADA-SCID. This is her story…
Jasper’s Story
After months of illness following his birth, Jasper was eventually diagnosed with SCID. This is his story..
Kai’s Story
Sumali is the mum of Kai. Kai was diagnosed with SCID after abnormalities in his Newborn Screening test. This is their story…