Celebrating International Plasma Awareness Week!

[et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”row” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] International Plasma Awareness Week is an annual initiative… Continue reading Celebrating International Plasma Awareness Week!

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Jack’s Story

Jack was hospitalised with a respiratory infection and then with pneumonia at seven months. Subsequent Genetic testing provided Jack’s parents with some insight when he was diagnosed with Wiscott-Aldridge Syndrome. Here is Jack’s story…

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Gloria’s Story

Gloria is the mother of 11 year old Sean. Sean is an amazing young man who underwent a stem cell transplant for X-SCID in 2012. This is her story…

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Carolyn Dews, IDFA CEO, Takes on Ride500 Challenge

[et_pb_section fb_built=”1″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.18.0″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”] Carolyn Dews, IDFA CEO, Takes on Ride500 Challenge  To celebrate the… Continue reading Carolyn Dews, IDFA CEO, Takes on Ride500 Challenge

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Young Adult Members Conference: 23 July 2022

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Oli’s Story

As a sporty teenager, Oli has struggled to accept his diagnosis and doesn’t want his health to affect his sport. Oli has shared his story in the hope that there may be other young people out there who feel the same. This is his story…

2022 World PI Week (22-29th April)

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2022 Rare Disease Day

[et_pb_section fb_built=”1″ admin_label=”About Me” _builder_version=”4.16″ background_enable_image=”off” parallax=”on” custom_padding=”10px||4px||false|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ _module_preset=”default” custom_padding=”||50px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_post_title author=”off” comments=”off” featured_image=”off” _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][/et_pb_post_title][et_pb_image src=”https://www.idfa.org.au/wp-content/uploads/2022/02/Facebook-Cover-Image-.jpg” _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][/et_pb_image][et_pb_text _builder_version=”4.16″ text_font=”||||||||” text_font_size=”16px”… Continue reading 2022 Rare Disease Day

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