[et_pb_section fb_built=”1″ _builder_version=”4.6.6″ custom_margin=”0px|0px|0px|0px|true|true” custom_padding=”0px|0px|0px|0px|true|true”][et_pb_row _builder_version=”4.6.6″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”||||false|false”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.6.6″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”] SCID NEWBORN SCREENING UPDATE IDFA have been advocating for SCID newborn screening… Continue reading SCID Newborn Screening Update
Author: idfa
Primary Immune Education (PIE) Program
We are excited to announce the beginning of our Primary Immune Education (PIE) Program. The PIE Program is a series of 12 educational webinars held each Thursday evening from 3 June through to 19 August 2021. The program aims to educate and inform Australians affected by primary immunodeficiency (PI) on topics relevant to diagnosis and lifestyle, addressing PI from a wholistic perspective.
IDFA members collaborate with us for World PI Week 2021
Bianca’s Story
With two children, both suffering from recurrent infections and various other illnesses, Bianca instinctively knew there was an issue. Her is her story…
Lisa’s Story
Lisa always knew she wanted to have children but thought it wasn’t possible due to her genetic condition Chronic Granulomatous Disorder (CGD). Here is her story…
World PI Week: 22-29 April 2021
Married with three grown children, Sharon was living a full life when a medical event turned her life upside down. Hospitalised and in a life-threatening situation she eventually recovered only to receive a diagnosis of Common Variable Immunodeficiency (CVID). Sharon relies on regular intravenous immunoglobulin therapy (IVIg) to keep infections at bay and delights in being a grandmother.