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News and Media
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e-Newsletters
We communicate regularly with our members via newsletters. The latest issues are posted below.
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March 24 Newsletter
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February 24 Newsletter
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January 24 Newsletter
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Latest IDFA Updates
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Media Releases
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Olivia Murdoch emphasises the importance in raising awareness for all rare diseases. “We know that education about these kinds of illnesses will provide earlier diagnosis and treatment for people, with the aim to avoid potentially life-threatening situations, which we had to endure.”
READ MORE
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Receiving a diagnosis of an immunodeficiency has an impact across all aspects of your day-to-day life. Our Patient Membership offers resources, events, tools and community to support you through your journey.
READ MORE
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Upcoming Events
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IDFA hosts a range of different events, meetings and webinars for our members.
Upcoming events are listed on our events page.
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Important Dates
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Held on the last day of February each year Rare Disease Day is an international campaign aimed at raising awareness of rare diseases amongst the general public and decision makers about the impact of rare disease on patients’ lives.
FIND OUT MORE
[/et_pb_accordion_item][et_pb_accordion_item title=”World PI Week – 22-29 April” open_toggle_background_color=”gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa” icon_color=”#f59164″ toggle_icon=”P||divi||400″ toggle_icon_tablet=”I||divi||400″ toggle_icon_phone=”I||divi||400″ toggle_icon_last_edited=”on|desktop” _builder_version=”4.22.1″ _module_preset=”default” body_font=”Montserrat|300|||||||” body_font_size=”16px” border_radii=”on|10px|10px|10px|10px” border_width_all=”0px” global_colors_info=”{%22gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa%22:%91%22open_toggle_background_color%22,%22open_toggle_background_color%22%93}” toggle_font_size=”20px” closed_toggle_font=”Montserrat||||||||” closed_toggle_font_size=”20px” toggle_icon__hover=”I||divi||400″ toggle_icon__hover_enabled=”on|hover” open=”off”]
Observed every year from April 22 to April 29 World PI Week is a global initiative that aims to increase awareness and improve the early diagnosis and treatment of primary immunodeficiencies (PI).
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[/et_pb_accordion_item][et_pb_accordion_item title=”International Plasma Awareness Week – First week of October” open_toggle_background_color=”gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa” icon_color=”#f59164″ toggle_icon=”P||divi||400″ toggle_icon_tablet=”I||divi||400″ toggle_icon_phone=”I||divi||400″ toggle_icon_last_edited=”on|desktop” _builder_version=”4.22.1″ _module_preset=”default” body_font=”Montserrat|300|||||||” body_font_size=”16px” border_radii=”on|10px|10px|10px|10px” border_width_all=”0px” global_colors_info=”{%22gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa%22:%91%22open_toggle_background_color%22,%22open_toggle_background_color%22%93}” toggle_font_size=”20px” closed_toggle_font=”Montserrat||||||||” closed_toggle_font_size=”20px” toggle_icon__hover=”I||divi||400″ toggle_icon__hover_enabled=”on|hover” open=”off”]
Held annually, International Plasma Awareness Week raises global awareness about source plasma collection, recognises the valued contributions of donors, and increases understanding about plasma protein therapies and rare diseases.
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Coronavirus (COVID-19) Updates
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The global pandemic is an ever-changing situation so it’s important you keep up to date with the current status in your state or territory. For those living with an immunodeficiency please seek guidance specific to your illness from your medical team particularly if you suffer from respiratory issues.
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COVID-19 – immunodeficiency and vaccines
With the implementation of Australia’s COVID-19 vaccine national rollout strategy, we have had a range of questions from our members about what this will mean for people with primary or secondary immunodeficiency.
We have compiled a list of resources for you which provide information specific to the immunodeficiency community, the vaccines available in Australia and the national rollout strategy.
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COVID-19 Resources
[/et_pb_text][et_pb_accordion open_toggle_text_color=”#F59164″ open_toggle_background_color=”#fedcc6″ closed_toggle_text_color=”#F59164″ closed_toggle_background_color=”#FEDCC6″ toggle_icon=”P||divi||400″ icon_color=”gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa” use_icon_font_size=”on” icon_font_size=”22px” toggle_icon_tablet=”P||divi||400″ toggle_icon_phone=”P||divi||400″ toggle_icon_last_edited=”on|phone” _builder_version=”4.22.1″ _module_preset=”default” toggle_text_color=”#F59164″ toggle_font=”Montserrat|600|||||||” toggle_font_size=”18px” toggle_line_height=”1.5em” body_text_color=”#666666″ background_enable_color=”off” border_radii=”on|15px|15px|15px|15px” border_width_all=”0px” box_shadow_style=”preset3″ box_shadow_color=”rgba(0,0,0,0.18)” global_colors_info=”{%22gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa%22:%91%22background_color%22,%22open_toggle_background_color%22,%22icon_color%22%93}”][et_pb_accordion_item title=”ASCIA COVID-19 Resources” open=”on” open_toggle_background_color=”gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa” icon_color=”#f59164″ toggle_icon=”P||divi||400″ toggle_icon_tablet=”I||divi||400″ toggle_icon_phone=”I||divi||400″ toggle_icon_last_edited=”on|desktop” _builder_version=”4.19.0″ _module_preset=”default” body_font=”Montserrat|300|||||||” body_font_size=”16px” border_radii=”on|10px|10px|10px|10px” border_width_all=”0px” global_colors_info=”{%22gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa%22:%91%22open_toggle_background_color%22%93}” toggle_font_size=”20px” closed_toggle_font=”Montserrat||||||||” closed_toggle_font_size=”20px” toggle_icon__hover=”I||divi||400″ toggle_icon__hover_enabled=”on|hover”]
- ASCIA – COVID-19 vaccine FAQ’s for those living with allergy, immunodeficiency and autoimmunity
- ASCIA – Guide: Immunodeficiency, Autoimmunity and COVID-19 Vaccination
- ASCIA – Allergy, Immunodeficiency and Autoimmunity COVID-19 Vaccination Position Statement
- ASCIA Position Statement – COVID-19 Prophylaxis in People with Immune Deficiencies
- ASCIA – Evusheld for COVID-19 prophylaxis
[/et_pb_accordion_item][et_pb_accordion_item title=”Australia Government COVID-19 Resources” open_toggle_background_color=”gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa” icon_color=”#f59164″ toggle_icon=”P||divi||400″ toggle_icon_tablet=”I||divi||400″ toggle_icon_phone=”I||divi||400″ toggle_icon_last_edited=”on|desktop” _builder_version=”4.22.1″ _module_preset=”default” body_font=”Montserrat|300|||||||” body_font_size=”16px” border_radii=”on|10px|10px|10px|10px” border_width_all=”0px” global_colors_info=”{%22gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa%22:%91%22open_toggle_background_color%22%93}” toggle_font_size=”20px” closed_toggle_font=”Montserrat||||||||” closed_toggle_font_size=”20px” toggle_icon__hover=”I||divi||400″ toggle_icon__hover_enabled=”on|hover” open=”off”]
- Australian Government – Department of Health – updates for COVID-19 vaccines
- Australian Government – Department of Health – Australia’s vaccine national rollout strategy
- Australian Government – Department of Health – Information for people with disability about COVID-19 vaccines
- Australian Government – Department of Health – COVID-19 health alert information
[/et_pb_accordion_item][et_pb_accordion_item title=”Worldwide Joint Statement” open_toggle_background_color=”gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa” icon_color=”#f59164″ toggle_icon=”P||divi||400″ toggle_icon_tablet=”I||divi||400″ toggle_icon_phone=”I||divi||400″ toggle_icon_last_edited=”on|desktop” _builder_version=”4.22.1″ _module_preset=”default” body_font=”Montserrat|300|||||||” body_font_size=”16px” border_radii=”on|10px|10px|10px|10px” border_width_all=”0px” global_colors_info=”{%22gcid-a6ff619a-ef15-4c14-8d8d-c5228e3855aa%22:%91%22open_toggle_background_color%22%93}” toggle_font_size=”20px” closed_toggle_font=”Montserrat||||||||” closed_toggle_font_size=”20px” toggle_icon__hover=”I||divi||400″ toggle_icon__hover_enabled=”on|hover” open=”off”]
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