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Patient Support

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Supporting all Australians living with immunodeficiency

Receiving a diagnosis of primary or secondary immunodeficiency has an impact across all aspects of your day-to-day life. Living a life of multiple medical appointments, illnesses and medications is exhausting which is why IDFA offers a variety of ways to support you.

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How can IDFA support you?

You’re not alone in this journey. No matter where you live in Australia, we can provide a community and the extra support you’re looking for through our membership program.

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Social support – bringing you together with others affected by immunodeficiency

Connect with the IDFA community in our private Facebook groups
Patient linking – connect with others who have similar a PID/SID
Member get-togethers supported by IDFA.

Emotional support – giving you opportunities to share your experience with others

Practical advice on living with immunodeficiency
Peer support programs.

Educational support – learn more about primary and secondary immunodeficiency

Resources (e-resources and hard copy)
Educational programs
Patient meetings and conferences (in-person and online)
Webinars
Guidance on accessing NDIS and Centrelink services
Guidance from our Medical Advisory Committee
Group support.

Advocacy support – encouraging self-advocacy and advocating for you on key issues

Through social media you can advocate for yourself by sharing our news, updates and educational graphics.
IDFA advocates on your behalf influencing policy makers and government on key issues e.g. SCID newborn screening.

Awareness support – giving you opportunities to share your experience with others

Community education programs
Awareness campaigns throughout the year e.g. World PI Week, National Blood Donor Week, International Plasma Awareness Week
Raising awareness in the medical and broader community by attending and speaking at special events encouraging acceptance of immunodeficiencies.

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